Teaching
Students Who Are Deaf-Blind and Cognitively Disabled To Effectively Communicate
Choices During Mealtime.
by
Carol Gothelf
Director, Education Services, The Jewish Guild for the Blind.
Daniel B. Crimmins
Director, Department of Psychology, Westchester Institute for Human
Development and New York Medical College Cedarwood Hall.
Caren A. Mercer
Principle, Guild School, The Jewish Guild for the Blind.
Patricia A. Finocchiaro
Coordinator, Day Treatment Program, The Jewish Guild for the Blind.
Individuals who are deaf-blind and have a cognitive disability may not effectively communicate their desires and choices even when provided with the opportunity to do so, in part because of their frequently limited communication skills. The ability of these individuals to make choices may be further constrained by instructional staff and caregivers, who anticipate their wishes and make choices for them. These caregivers and instructional staff may be acting with only the best intentions for these individuals, perhaps in the belief that they are unable to make a meaningful choice.
Often, however, these individuals have not been taught how to make a choice.
For students who are deaf-blind and cognitively disabled to achieve valued life outcomes, it is essential that they are able to effectively communicate personal choices. Given the essential nature of the ability to communicate choice and the potential barriers to choice-making, it is necessary to focus on teaching students who are deaf-blind and cognitively disabled the process of making meaningful choices and to develop a flexible curriculum in which they have opportunities to practice making choices within the context of their daily routines. Mealtime is ideal for this instruction. It naturally occurs on a consistent, daily basis, in school, at home and in community environments.
The act of communicating what one wants to eat or drink and receiving what one has chosen results in natural consequences that are highly motivating, thus reinforcing the power of clear communication.
The table that follows offers a set of practical guidelines for teaching
students who are deaf-blind and cognitively disabled to make choices during
mealtimes. It is offered as an aid to instructional staff and caregivers
to illustrate the ways in which a typical daily activity can be utilized
to teach choice-making within the context of a natural routine. In addition,
it has implications for how the skill can be increased in complexity as
the student progresses. We offer this as an example that can be applied
in other settings and activities, which include selecting something to
do, choosing with whom to do it, choosing where to do it, choosing when
to do i,t or choosing whether to do it at all (Brown Gothelf, in
preparation; Crimmins Gothelf, in press).
Table 1
Choice-making Instruction
Guiding Principle.
People typically make choices in the environments in which the outcomes
of their choice are available.
Example.
Choosing what to eat should take place where the student normally eats.
Teaching choice-making in an artificial environment removes many of
the naturally-occurring cues to the event.
Considerations.
Administrative policies and procedures should ensure that the choice-making
process can take place. This may involve working with the cafeteria staff
or revising lunch-time schedules.
Guiding Principle.
The boundaries in which the choice-making activity takes place should
be defined through the use of appropriate aids and cues. Providing boundaries
minimizes the visual-motor and cognitive requirements of orienting and
reaching.
Example.
A dycem placemat can be used to secure a cafeteria tray on a table,
or on the lap tray of a student's wheel chair. A second dycem mat can be
used to secure the plates and glasses on the tray. (Dycem is a non-slip
plastic that is helpful in stabilizing objects on surfaces. It comes in
reels or sheets that can be cut to size. It is portable, easily cleaned,
inexpensive and available from adaptive aids catalogs).
Considerations.
If cafeteria trays are not available or necessary, the plates of food
can be placed on a dycem mat directly on a table. For students with vision,
the color of the dycem should be selected to provide contrast with the
tray or table and the plates.
Guiding Principle.
Individual preferences play an important role in enhancing motivation
for the activity.
Example.
The student is presented with two entree samples, one at a time. The
items from which a student is choosing should be two things which he or
she is likely to want to eat.
Considerations.
Administrators should work with cafeteria staff to ensure that appropriate
alternatives are made available. (E.g., if two hot meals are not available,
a choice between a hot meal and sandwich, or between two sandwiches should
be substituted.) Be aware that food preferences are influenced by a student's
cultural and family background.
Guiding Principle.
The student is made aware of the food through tactile-kinesthetic cues
(guided or paired movements between the teacher and the student), visual,
verbal, gestural and object cues. The teacher must assess the conditions
that facilitate comprehension (e.g., with gestures, without gestures, etc.).
Example.
For each sample of food, the student is moved through touching the
plate, touching the food, smelling the food, and tasting the food. A staff
member will say the name of the food, sign it, and shape the student's
hands to sign the name of the food.
Considerations.
The student's receptive vocabulary may be limited. Natural routines
should be maintained within the normal context of mealtime in order to
help the student comprehend the expectancies for his or her behavior.
Guiding Principle.
Choices should be presented consistently in order to reinforce the
physical structure within which choosing occurs. Placing the choices in
the same locations in relation to the student's body each time they are
presented helps the student to anticipate where the sample is likely to
be.
Example.
The first sample is presented on the student's left, tasted with the
left hand, and then removed. The second sample is then presented on the
student's right, tasted with the right hand, and then removed. Care must
be taken to ensure that the individual is not always choosing the sample
on the right or the sample on the left.
Considerations.
The student's ability to reach, grasp, and manipulate utensils or the
food itself, may be influenced by poor muscle tone, stability, or coordination,
as well as limited visual functioning. Generally, proper postural alignment
can be attained through the use of adaptive positioning equipment. Grasping
and manipulating utensils can be assisted through the use of adaptive aids
such as special spoons, plates with lips, or slant trays. (Campbell, 1987).
Guiding Principle.
Establishing routines within instructional sequences enables the student
to anticipate the next step and encourages self-initiated choice-making.
A pause or time-delay in a sequence (hands in the lap) may serve as a prompt
to the student to initiate an interaction or make a selection (Siegel-Causey
Ernst, 1989).
Example.
Both samples are then presented to the student. The student touches
the left plate with the left hand, and the right plate with the right hand.
As the student touches each sample, he or she is reminded of its name.
The student is then directed to place both hands in his or her lap (using
verbal and-or physical prompt as needed). The student is then instructed:
It is time to pick what you want for lunch. Language input should be provided
at a level and in a mode that the student can comprehend.
Considerations.
If a student does not respond when the question is repeated, the teacher
communicates: That's OK, if you don't want the meat or the rice, I'll ask
you again soon. Language input should be provided at a level and in a mode
that the student can comprehend. The teacher should always return and provide
the student with another opportunity and additional prompting if necessary.
Guiding Principle.
Reliable communication of preference depends upon a foundation of consistent
responses to the student's non-verbal behaviors. Non-verbal behaviors need
to be acknowledged by the teacher on the assumption that the individual
is attempting to communicate meaningful dialog. This provides a basis for
communicating shared meanings (Guess, Benson, Siegel-Causey, 1985;
Williams, 1991).
Example.
The student chooses the desired food by touching one of the samples,
by looking or facial gesture, by starting to eat, by vocal sounds and-or
body movements, by signing or in any way indicating his or her preference.
Considerations If the student reaches for both, or neither, the teacher
must repeat the previous procedure, and reinforce that the student must
choose one sample. The teacher must acknowledge any form of communication.
If the student repeatedly reaches for both, he should be given some of
each for lunch.
Guiding Principle.
Components of everyday routines should be utilized to establish correspondence
between words and their meanings. Routines enable students to take an active
part in the activity and to communicate with the teacher.
Example.
The staff signs finished for the undesired plate and moves the student
through the sign finished and prompts the student to move the plate away.
Considerations.
Initially, the student may require the teacher to move his hands for
him. Subsequently, the teacher and the student should cooperatively move
their hands together, the student's hands riding on top of the teacher's.
The teacher should pause in the pushing action, and allow the student to
communicate a desire to continue by moving the teacher's hands.
Guiding Principle.
In addition to establishing correspondence between words and their
meanings, the process of systematically using routines in the choice-making
process must be established.
Example.
The teacher signs eat and the name of the desired food, and prompts
the student to do the same.
This procedure must follow the previous one.
Considerations.
The teacher may choose other ways to communicate the same message,
such as signing the student's name followed by the signs for wants to eat
and the name of the food. Language input should be provided at a level
and in a mode that the student can comprehend.
Guiding Principle.
Contingent communicative behavior is reinforced by getting the requested
item.
The student communicates through an action or a signal to indicate
his preference.
Example.
The student is served a full portion of the food that was selected.
Considerations.
The student must join the cafeteria line to obtain the full portion
of food.
Table adapted from Gothelf, C.R., Crimmins, D.B., Mercer, C.A.,
Finocchiaro, P.A., (in press). Teaching choice-making skills to students
with dual sensory impairments. TEACHING Exceptional Children; reprinted
by permission of the editor.
References.
Brown, F., Gothelf, C.R. (in preparation). Teaching Choice Diversity:
A Curriculum For Individuals With Severe Disabilities.
Campbell, Philippa H. (1987). Integrated Programming for Students with
Multiple Handicaps. In L. Goetz, D. Guess, K. Stremel-Campbell
(Eds.),
Innovative Program Design for Individuals with Dual Sensory Impairments
(pp.
159-188). Baltimore: Paul H. Brookes.
Crimmins, D.B., Gothelf, C.R. (in press). Examining The Communicative
Purposes Of Behavior. American Foundation for the Blind: Deaf-Blind
Project.
New York: American Foundation for the Blind.
Guess, D., Benson, H.A. Siegel-Causey, E. (1985). Concepts and
Issues
Related To Choice-making and Autonomy Among Persons With Severe Disabilities.
The Journal of the Association for Persons with Severe Handicaps, 10,
79-86.
Siegel-Causey, E. Ernst, B. (1989). Theoretical Orientation And
Research In
Nonsymbolic Development. In E. Siegel-Causey D. Guess (Eds.),
Enhancing
Nonsymbolic Communication Interactions Among Learners With Severe Disabilities
(pp. 17-51). Baltimore: Paul H. Brookes.
Williams, R.K. (1991). Choices, communication, and control: A call
for
expanding them in the lives of people with severe disabilities. In
L. Meyer,
C. Peck, L. Brown (Eds.), Critical Issues In The Lives Of People
With Severe
Disabilities (pp. 543-544). Baltimore: Paul H. Brookes.